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Webinar Replay expires June 13, 2018.
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Webinar Replay expires June 13, 2018.
Patient recruitment is a challenging activity, which becomes even more so in rare diseases where populations are small, patients are geographically dispersed, and eligible subjects may not be physically (or economically) capable of traveling to a trial site. Unfortunately, current recruiting methods (e.g., listing on trial and patient organization websites, relying on key opinion leaders and trial investigators, billboards) may be limited in reach, overly reliant on busy physicians, and too costly or cost-ineffective. It behooves clinical researchers in rare diseases to consider mechanisms beyond these standard approaches. The aim of this presentation is to catalyze unconventional thinking and to provide a framework to organize innovative patient recruitment ideas.
This presentation will include information on leveraging a multitude of data sources and medical informatics to guide clinical trial design; on strategies to develop clinical trials that are patient-friendly and minimize the burden on patients, families, and caregivers; on digital patient recruitment platforms (Social Media, Search Engines, Website/Display Advertising that provide a targeted approach to patient recruitment; and how to link sites, investigators, patients and advocacy groups together to create a holistic ecosystem supportive of rare disease clinical trials.
Upon completion of this Webinar, attendees should be able to:
Speaker, Badri Rengarajan, currently serves as Medical Affairs Lead for the ASPIRE unit at Actelion Pharmaceuticals, US. He serves as study physician for the largest observational study in MF variant cutaneous T-cell lymphoma (PROVe), co-leads the investigator-initiated study program for ASPIRE, and oversees an interdisciplinary team of professionals across medical affairs, field medical, and clinical operations. He has over 15 years of healthcare industry experience including roles in healthcare modeling and analytics, medical affairs, product development strategy & new product planning, regulatory affairs, market research, and business development.
Speaker, Scott Schliebner, is a clinical strategist with a 20+ year background in clinical drug development focused on rare diseases. He provides strategic, scientific and operational guidance on clinical trial design, competitive landscape analysis, investigator selection, advocacy group engagement, and operational considerations to effectively execute rare disease clinical trials. Prior to developing and leading PRA Health Sciences’ Rare Disease division, Mr. Schliebner served as the Chief Operating Officer for an oncology research organization focused on accelerating the development of targeted cancer therapies for rare tumor types.
Speaker, Bethany Bray, an Oncology and Neuroscience Researcher, Entrepreneur and Technologist, founded AutoCruitment (a technology-enabled digital patient recruitment platform) to address recruitment, enrollment and retention problems in clinical trials. Bethany has a strong background in healthcare and clinical research, giving her a unique insight into the requirements of healthcare providers as well as companies conducting clinical trials. Bethany has served as an Oncology Research Specialist at the Winship Cancer Institute of Emory University Hospital, has 10 years of experience in Pharmaceutical Research, Operations, and Business Development and holds a BSc in Pharmacology, a Masters in Translational Medicine & Neuroscience from Imperial College London and an MBA from the Georgia Institute of Technology.
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